Asked by: Alex Sobel (Labour (Co-op) - Leeds North West)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps she is taking to reduce waiting times for Attention Deficit Hyperactivity Disorder assessments in Leeds North West constituency.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
It is the responsibility of the integrated care boards (ICBs) to make available the appropriate provision to meet the health and care needs of their local population, including access to attention deficit hyperactivity disorder (ADHD) assessments, in line with relevant National Institute for Health and Care Excellence (NICE) guidelines. The NICE guidelines for ADHD diagnosis and management aim to improve the diagnosis of ADHD and the quality of care and support people receive. The NICE guidelines do not recommend a maximum waiting time standard for ADHD diagnosis, either from referral for an assessment to receiving an assessment, a diagnosis, or a first contact appointment.
There is, at present, no single, established dataset that can be used to monitor waiting times for assessment for ADHD. A specific assessment of the implications for departmental policies of the number of people on a waiting list, or the number of assessments provided each month for adult ADHD services in Leeds, is not currently planned.
The Department is exploring options to improve data collection and reporting on ADHD assessment waiting times nationally, to help improve access to ADHD assessments in a timely way, and in line with the NICE guideline. In support of this, the National Institute for Health and Care Research’s Policy Research Programme has commissioned a research project to provide insights into local ADHD diagnosis waiting times data collection.
In December 2023, NHS England initiated a rapid piece of work to consider ADHD service provision within the National Health Service. The initial phase of work identified challenges, including with current service models and the ability to keep pace with demand. Following this initial review, NHS England is establishing a new ADHD taskforce alongside the Government, to improve care for people living with the condition. The new taskforce will bring together expertise from across a broad range of sectors, including the NHS, education, and justice, to better understand the challenges affecting people with ADHD and help provide a joined-up approach in response to concerns around rising demand for assessments and support.
Alongside the work of the taskforce, NHS England has announced that it will continue to work with stakeholders to develop a national ADHD data improvement plan, carry out more detailed work to understand the provider and commissioning landscape, and capture examples from local health systems who are trialling innovative ways of delivering ADHD services, to ensure best practice is captured and shared across the system.
Asked by: Alex Sobel (Labour (Co-op) - Leeds North West)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if she will make an assessment of the implications for her policies of the number of (a) people that are on a waiting list and (b) assessments provided each month at the Leeds adult attention deficit hyperactivity disorder service.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
It is the responsibility of the integrated care boards (ICBs) to make available the appropriate provision to meet the health and care needs of their local population, including access to attention deficit hyperactivity disorder (ADHD) assessments, in line with relevant National Institute for Health and Care Excellence (NICE) guidelines. The NICE guidelines for ADHD diagnosis and management aim to improve the diagnosis of ADHD and the quality of care and support people receive. The NICE guidelines do not recommend a maximum waiting time standard for ADHD diagnosis, either from referral for an assessment to receiving an assessment, a diagnosis, or a first contact appointment.
There is, at present, no single, established dataset that can be used to monitor waiting times for assessment for ADHD. A specific assessment of the implications for departmental policies of the number of people on a waiting list, or the number of assessments provided each month for adult ADHD services in Leeds, is not currently planned.
The Department is exploring options to improve data collection and reporting on ADHD assessment waiting times nationally, to help improve access to ADHD assessments in a timely way, and in line with the NICE guideline. In support of this, the National Institute for Health and Care Research’s Policy Research Programme has commissioned a research project to provide insights into local ADHD diagnosis waiting times data collection.
In December 2023, NHS England initiated a rapid piece of work to consider ADHD service provision within the National Health Service. The initial phase of work identified challenges, including with current service models and the ability to keep pace with demand. Following this initial review, NHS England is establishing a new ADHD taskforce alongside the Government, to improve care for people living with the condition. The new taskforce will bring together expertise from across a broad range of sectors, including the NHS, education, and justice, to better understand the challenges affecting people with ADHD and help provide a joined-up approach in response to concerns around rising demand for assessments and support.
Alongside the work of the taskforce, NHS England has announced that it will continue to work with stakeholders to develop a national ADHD data improvement plan, carry out more detailed work to understand the provider and commissioning landscape, and capture examples from local health systems who are trialling innovative ways of delivering ADHD services, to ensure best practice is captured and shared across the system.
Asked by: Robert Buckland (Conservative - South Swindon)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment her Department has made of the effectiveness of NHS England’s Dynamic Support Register policy.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
NHS England published updated policy and guidance on Dynamic Support Registers (DSRs) and Care (Education) and Treatment Reviews (C(E)TRs) on 25 January 2023, for implementation from 1 May 2023. The purpose of the updated policy and guidance is to help ensure that people with a learning disability and autistic people get the right support, to stay well in their communities.
NHS England produced the updated policy and guidance following a process of reviewing the learning since the inception of DSRs and C(E)TRs, including consultation and engagement with people with lived experience. This process included drawing on the findings of the Norfolk Safeguarding Adults Board’s review of the deaths of Joanna, Jon, and Ben at Cawston Park in Norfolk, and the subsequent safe and wellbeing reviews for all people with a learning disability and autistic people in mental health hospitals.
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