Jul. 12 2024
Source Page: Charity funded equipment certificates (VAT Notice 701/6 supplement)Found: Social Services Board in Northern Ireland Hospital whose activities are not carried on for profit Research
Sep. 18 2024
Source Page: Puberty Blockers Pause: FOI releaseFound: taken the position that all access to PSH treatment will only be made available via a formal clinical research
Asked by: Sonia Kumar (Labour - Dudley)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve (a) diagnosis, (b) treatment and (c) awareness of Myalgic Encephalomyelitis (ME) in the NHS.
Answered by Andrew Gwynne - Parliamentary Under-Secretary (Department of Health and Social Care)
The Department, through the National Institute for Health and Care Research (NIHR), provides funding for research projects which aim to understand the underlying causes of myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), and find new treatments for the condition. For example, the NIHR, together with the Medical Research Council, have funded the world’s largest genome-wide association study of ME/CFS. This £3.2 million study, termed DecodeME, will analyse samples from 25,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or an increased risk of developing the condition. By helping us to understand ME/CFS better, this research has the potential to lead to new treatments for the condition.
Integrated care boards (ICBs) are responsible for commissioning specialist ME/CFS services that meet the needs of their population, subject to local prioritisation and funding. The process of commissioning services should take into account best practice guidance such as the National Institute for Health and Care Excellence’s (NICE) guidance on ME/CFS diagnosis and management, published in October 2021.
It is the duty of clinicians to keep themselves appraised of best practice, in particular guidance issued by the NICE. Whilst guidelines are not mandatory, clinicians and commissioners are expected to take them fully into account when designing services to meet the needs of their local population. The NICE promotes its guidance via its website, newsletters, and other media.
In October 2023, the British Association of Clinicians in ME/CFS published the ME/CFS National Services Survey. This report provides insight into the services being delivered for adults, children, and young people with ME/CFS.
The Department has been working with NHS England to develop an e-learning course on ME/CFS for healthcare professionals, to support staff to be able to provide better care and improve patient outcomes. This has involved feedback and input from patients. The Medical Schools Council will promote the NHS England e-learning package on ME/CFS to all United Kingdom medical schools, and encourage medical schools to provide undergraduates with direct patient experience of ME/CFS. A decision on next steps on ME/CFS at the national level will be taken in the coming weeks.
Nov. 12 2010
Source Page: Table showing the number of certificates of sponsorship assigned by occupation, job title and geographical area of sponsorship in 2009.Found: Associate†Clinical Research Fellow15.0Clinical Research Fellow Accident & Emergency†Clinical Research
Jul. 02 2024
Source Page: Urinary Tract Infection (recurrent): antimicrobial prescribingFound: Centre Acrodysostosis Support & Research Action Kidney Cancer Advanz Pharma Advisory Committee on Antimicrobial
Jul. 10 2024
Source Page: Puberty Blockers deferred for new patients: FOI releaseFound: taken the position that all access to PSH treatment will only be made available via a formal clinical research
Written Evidence May. 28 2024
Committee: Public Accounts CommitteeFound: This research, entitled Mapping underdoctored areas: the impact of medical training pathways on NHS
Asked by: Lord Alton of Liverpool (Crossbench - Life peer)
Question to the Department for Science, Innovation & Technology:
To ask His Majesty's Government what collaborations on medical research are currently taking place between government-funded universities in the UK, and medical and research institutions based in China; and whether any of these collaborations relate to organ transplantation.
Answered by Viscount Camrose - Shadow Minister (Science, Innovation and Technology)
The International Science Partnerships Fund and Newton Fund have active medical research programmes involving collaborations between UK Higher Education Institutions and Chinese counterparts. These predominantly focus on antimicrobial resistance and pandemic preparedness and none of them relate to organ transplantation.
Found: Reviews of evidence for hormone pregnancy tests 4 The Independent Medicines and Medical Devices Safety