Information between 10th January 2024 - 19th May 2024
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| Parliamentary Debates |
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People with Disabilities: Access to Services
39 speeches (20,618 words) Thursday 16th May 2024 - Lords Chamber Department for Work and Pensions Mentions: 1: Baroness Thomas of Winchester (LD - Life peer) claimants are often turned down initially for eligibility for PIP, even if they have a condition such as muscular - Link to Speech |
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Animal Testing
35 speeches (12,132 words) Monday 19th February 2024 - Westminster Hall Department for Science, Innovation & Technology Mentions: 1: Chi Onwurah (Lab - Newcastle upon Tyne Central) Understanding Animal Research also gives the example of Duchenne muscular dystrophy, a lethal childhood - Link to Speech |
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Children Not in School: National Register and Support
57 speeches (17,132 words) Tuesday 23rd January 2024 - Commons Chamber Department for Education Mentions: 1: Sarah Dyke (LD - Somerton and Frome) Child C, in a wheelchair with muscular dystrophy, might be absent because the staff member who helps - Link to Speech |
| Select Committee Documents |
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Tuesday 19th March 2024
Report - Large Print - Accessibility of products and services to disabled people Women and Equalities Committee Found: Trust ( NDS0029 ) 21 Inclusion London ( NDS0030 ) 22 Liberation ( NDS0034 ) 23 Mencap ( NDS0027 ) 24 Muscular |
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Wednesday 13th March 2024
Report - Fourth Report - Accessibility of products and services to disabled people Women and Equalities Committee Found: Trust ( NDS0029 ) 21 Inclusion London ( NDS0030 ) 22 Liberation ( NDS0034 ) 23 Mencap ( NDS0027 ) 24 Muscular |
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Friday 2nd February 2024
Written Evidence - Muscular Dystrophy UK DPH0027 - Disabled people in the housing sector Disabled people in the housing sector - Levelling Up, Housing and Communities Committee Found: DPH0027 - Disabled people in the housing sector Muscular Dystrophy UK Written Evidence |
| Department Publications - News and Communications |
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Saturday 23rd March 2024
Department for Education Source Page: New PE guidance for schools strengthens equal access to sport Document: New PE guidance for schools strengthens equal access to sport (webpage) Found: new equipment for accessible activities like Boccia and Goalball, pupils with disabilities such as Muscular |
| Department Publications - Transparency |
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Tuesday 19th March 2024
Ministry of Defence Source Page: FOI responses published by MOD: week commencing 18 March 2024 Document: Joining the Royal Navy with spinal surgery for Scheuremann's disease (JSP 950) (PDF) Found: training and the wearing of boots and if there is no associated neurological disorder (such as peroneal muscular |
| Department Publications - Consultations |
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Thursday 29th February 2024
Department for Transport Source Page: Smarter regulation: proposed changes to legislation for electrically assisted pedal cycles Document: Smarter regulation: proposed changes to legislation for electrically assisted pedal cycles – impact assessment (PDF) Found: specifically, e -cycle users with conditions or impairments that cause muscle weakness or fatigue (such as muscular |
| Non-Departmental Publications - Transparency |
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Jan. 25 2024
NHS England Source Page: NHS England: annual report and accounts 2022 to 2023 Document: NHS England: annual report and accounts 2022 to 2023 (print ready) (PDF) Transparency Found: years • Ataluren (Translarna®) – routine approval for the first licensed treatment for Duchenne muscular |
| Scottish Cross Party Group Publications |
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Annual Return 2022 to 2023
(PDF) Source Page: Cross-Party Group in the Scottish Parliament on MS Found: t published by the Group should also be provided. 15/3/23 This was a joint Meeting with CPG on Muscular |
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CPG Changing Places Toilets 1 June 22 MINUTES
(PDF) Source Page: Cross-Party Group in the Scottish Parliament on Changing Places Toilets Found: surrounding that, and we are the co -chairs of the UK Changing Places toilet consortium, along with Muscular |
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Annual return 2021 to 22
(PDF) Source Page: Cross-Party Group in the Scottish Parliament on Rare, Genetic and Undiagnosed Conditions Found: Further examples were provided by Muscular Dystrophy UK and a broad conversation about the challenges |
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Annual Return 2022 to 2023
(PDF) Source Page: Cross-Party Group in the Scottish Parliament on Muscular Dystrophy Found: Cross -Party Group Annual Return Name of Cross -Party Group Cross -Party Group on Muscular Dystrophy |
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Annual return 2021 to 2022
(PDF) Source Page: Cross-Party Group in the Scottish Parliament on Muscular Dystrophy Found: Cross -Party Group Annual Return Name of Cross -Party Group Cross -Party Group on Muscular Dystrophy |
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CPG on Rare Genetic Undiagnosed Conditions AGM 8 September 2022 Minutes
(PDF) Source Page: Cross-Party Group in the Scottish Parliament on Rare, Genetic and Undiagnosed Conditions Found: - The CPG has worked closely wit h the CPG on Muscular Dystrophy, convened by Jackie Baillie MSP |
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2021 Registration form
(PDF) Source Page: Cross-Party Group in the Scottish Parliament on Muscular Dystrophy Found: Dystrophy Purpose of The Group and Proposed Discussion Topics 1. |
| Scottish Parliamentary Research (SPICe) |
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Scottish Parliament Statistics 2021-2022
Tuesday 28th November 2023 View source webpage Found: Group in the Scottish Parliament on MS 29/10/ 2021 Cross-Party Group in the Scottish Parliament on Muscular |
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Scottish Parliament Statistics 2020-2021
Friday 28th October 2022 View source webpage Found: the Scottish Parliament on MS 15/09/ 201624/03/ 2021 Cross-Party Group in the Scottish Parliament on Muscular |
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Scottish Parliament Statistics 2019-2020
Friday 28th October 2022 View source webpage Found: Cross-Party Group in the Scottish Parliament on MS Cross-Party Group in the Scottish Parliament on Muscular |