Question to the Department of Health and Social Care:
To ask Her Majesty's Government, further to the Written Answer by Lord O'Shaughnessy on 3 May (HL7111), who are the members of the (1) National Data Opt-out Advisory Group, and (2) National Data Opt-out Editorial Board.
As of 15 June 2018, membership of the National Data Opt-out Advisory Group is comprised as follows:
- Association of Directors of Adult Social Services;
- Association of Directors of Children’s Services;
- Association of Medical Research Charities;
- British Medical Association;
- Cancer Research UK;
- Care Provider Alliance;
- Clinical Commissioning Group/Trust representation;
- Genetics Alliance UK;
- Healthwatch;
- Local Government Association;
- Macmillan;
- National Association for Patient Participation;
- National Data Guardian Panel;
- NHS Health Research Authority;
- Patient and Public Voice Partner;
- Professional Records Standards Body;
- Richmond Group;
- Royal College of General Practitioners;
- Royal College of Nursing;
- Royal College of Physicians; and
- Wellcome Trust.
As of 15 June 2018, membership of the National Data Opt-out Editorial Board is:
- NHS Digital;
- NHS England;
- Wellcome Trust;
- Department of Health and Social Care;
- General practitioner representative;
- Patient representative; and
- Association of Medical Research Charities.