Question to the Department of Health and Social Care:

To ask His Majesty's Government, further to the Written Answer by Lord Markham on 11 May (HL7533), when the next highly specialised services annual report will be published; whether it will include the results of NHS England's assessment of the levels of uptake of rare disease treatments; and whether they plan to place a copy of the assessment in the Library of the House.

NHS England’s specialised commissioning team has assessed the levels of uptake of rare disease treatments and presented the results to the last meeting of the NHS England Rare Diseases Advisory Group in April 2023. NHS England currently have no plans to publish this assessment or a further version of the highly specialised services annual report.