Question to the Department of Health and Social Care:

To ask His Majesty's Government what plans they have, if any, to develop specific national guidelines about Huntington’s disease to ensure patients with the disease have a clear, consistent and coordinated care pathway.

The National Institute for Health and Care Excellence (NICE) is the independent body that develops authoritative evidence-based guidance for the National Health Service on best practice. Topics for guideline development are identified and prioritised through a topic selection process that considers the evidence base, variation in practice and burden of disease.

Following the Westminster Hall debate on Huntington’s Disease on 9 November 2022, the Department is preparing an evidence-based paper on a potential guideline on Huntington’s Disease for consideration through the NICE topic selection process.