Question to the Department of Health and Social Care:
To ask His Majesty's Government for what reason the accessible version of the easy read PDF about NHS England’s Federated Data Platform says "No" in answer to the question "Can patients opt out of their data being shared in the FDP?", after the main "Frequently Asked Questions" page was changed to say that opt-outs will be respected.
The Frequently Asked Questions have been developed and refined based on feedback from stakeholders and the public. The National Data Opt-Out applies when confidential patient information is used for planning and research, not when it is used for direct care. Although the Federated Data Platform (FDP) will not use such information for planning or research, the answer was revised to make clear that, as with any system handling patient data, the National Data Opt-Out would be respected for any relevant uses of data.
We are committed to providing public information that is meaningful and accessible for a range of audiences. The easy read accessible version has been co-produced with representatives of the audience for whom it is designed. We will continue to keep this under review to make sure it is aligned with the other information available on the FDP.