Question to the Department of Health and Social Care:
To ask Her Majesty’s Government, further to the Written Answer by Earl Howe on 13 February (HL4626), which patient organisations were consulted in October 2014 on proposed changes to the Cancer Drugs fund re-evaluation process.
NHS England has advised that its proposals for changes to the operation of the Cancer Drugs Fund in 2014-15 and 2015-16 went out to public consultation for a four week period from 3 October 2014.
A direct mail regarding the consultation was sent for onward cascading to the following charities and patient organisations:
Healthwatch England
National Voices
Help and Care
National Association for Patient Participation
National Association for Voluntary & Community Action
National Care Forum
Patient Concern
Patients Association
Patient Opinion
Patient Information Forum
Association of Chief Executives of Voluntary Organisations
Action on Smoking & Health
Age UK
Alzheimer’s Society
Anthony Nolan Trust
Association of Medical Research Charities
Breakthrough Breast Cancer
British Heart Foundation
British Kidney Patient Association
British Red Cross
Cancer Research UK
Carers Trust
Carers UK
Citizens Advice Bureau
Kidney Cancer Support Network
Kidney Research UK
Macmillan Cancer Support
Marie Curie Cancer Care
Men's Health Forum
National Council for Palliative Care
National Council for Voluntary Organisations
Cancer 52
Prostate Cancer UK
Myeloma UK
Rarer Cancers Foundation
Roy Castle Lung Foundation
Beating Bowel Cancer
Clicsargent
UK Health Forum
Leukaemia Care
Brain Tumour UK
Breast Cancer Care
Children with Cancer UK
Bowel Cancer UK
The information was also sent directly to over 300 registered stakeholders of the NHS England Chemotherapy Clinical Reference Group (CRG) which includes many patient organisations.
In addition, the following organisations attended a patient organisations and charities consultation event:
Beating Bowel Cancer
Breast Cancer Campaign
Breakthrough Breast Cancer
GIST Support UK
Transforming Cancer Services for London Team
MHP Health
Target Ovarian Cancer
Cancer 52
Pancreatic Cancer UK
James Whale Fund for Kidney Cancer
Cancer Research UK
Jo's Cervical Cancer Trust
Lymphoma Association
Macmillan Cancer Support
The Brain Tumour Charity
Prostate Cancer UK
Rarer Cancers Foundation
MDS UK Patient Support Group