Question to the Department of Health and Social Care:

To ask His Majesty's Government how the cross-government delivery plan for myalgic encephalomyelitis/chronic fatigue syndrome will reflect their commitment to embracing the opportunities of digitalisation for NHS services.

The Government is committed to better care and support for people living with myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). We have reconvened the ME/CFS Task and Finish Group, including senior Department and cross-Government officials, ME/CFS specialists and researchers, representatives from NHS England, the National Institute for Health and Care Excellence, the National Institute for Health and Care Research (NIHR), the Medical Research Council (MRC), the devolved administrations, ME/CFS charities, and organisations and patients with lived experience of ME/CFS.

We cannot comment on the exact content of the final delivery plan at this time, but it will be shaped by responses to the 2023 consultation on the interim delivery plan, alongside continued stakeholder engagement via the ME/CFS Task and Finish Group, with three broad themes of boosting research, improving attitudes and education, and bettering the lives of those living with ME/CFS. We aim to publish the final delivery plan by the end of March 2025.

Research is an important pillar of the delivery plan for ME/CFS. Future planned action to support research in this area will take a cross-sectoral and inclusive approach, recognising the value of patient and public representatives in particular.

The Department funds research on ME/CFS through the NIHR and the MRC. The NIHR and the MRC remain committed to funding high-quality research to understand the causes, consequences, and treatment of ME/CFS, and are actively exploring the next steps for stimulating further research in this area. The MRC and NIHR currently fund research through a variety of routes, including infrastructure, research programmes, capacity building, through for example research fellowships, and, in the case of the NIHR, research delivery to support recruitment to studies. The NIHR welcomes the opportunity to work collaboratively with partners, including patient representative groups and industry, to stimulate further research in this area.