Question to the Department of Health and Social Care:
To ask Her Majesty’s Government what advice they have received from NHS England’s Rare Diseases Advisory Group.
The Rare Diseases Advisory Group was established in March 2014 by NHS England. It was set up to provide NHS England and the devolved administrations of Scotland, Wales and Northern Ireland with consistent advice on developing and implementing the strategy for rare diseases and highly specialised services. The Department has not received any advice from the group.