Leigh's Disease
(asked on 4th June 2014) - View Source
Question to the Department of Health and Social Care:
To ask Her Majesty's Government why funding for the selective dorsal rhizotomy procedure was withdrawn by NHS England in the case of Jake Foster who suffers from Leigh's disease.
This question was answered on 16th June 2014
Since 1 April 2013, NHS England has been responsible for commissioning specialised services. As a procedure, Selective dorsal rhizotomy (SDR) falls within this remit.
SDR is not typically considered as a treatment for patients with Leigh's Disease. For this reason, NHS England has not to date considered developing or publishing a policy on the use of SDR for this condition.