Question to the Department of Health and Social Care:

To ask His Majesty's Government when the UK National Screening Committee will publish (1) plans, and (2) timelines, for its in-service evaluation of newborn screening for spinal muscular atrophy.

Stakeholders will be kept updated on the progress of the in-service evaluation (ISE) for newborn screening for spinal muscular atrophy (SMA) via the UK National Screening Committee’s blog, which is available in an online only format. The most recent update was published on 24 January 2024, and detailed the progress of the SMA ISE, which is available in an online only format.