Question to the Department of Health and Social Care:

To ask Her Majesty’s Government how many patients with neurofibromatosis Type 1 are waiting to be treated at the two designated national specialist care centres.

Whilst the number of people with neurofibromatosis Type 1 (NF1) in England is estimated to number 11,267, the number of patients with a confirmed diagnosis is not collected.

In the following table we have provided the number of finished admission episodes (FAEs) for patients with a primary diagnosis of NF1 who were treated at the two national specialist centres in 2012-13, the most recent period for which data is available. An FAE is a continuous period of admitted patient care under one consultant within one health care provider. It should be noted the figures do not represent a count of patients, as a person may have more than one episode of care within the same stay in hospital or in different stays in the same year.

Source: Hospital Episode Statistics (HES), Health and Social Care Information Centre

Information concerning the number of patients waiting to be treated at the two national centres is not available.