Question to the Department of Health and Social Care:
To ask Her Majesty’s Government out of all known patients with neurofibromatosis Type 1, how many were treated in the last 12 months at the two designated national specialist care centres.
Whilst the number of people with neurofibromatosis Type 1 (NF1) in England is estimated to number 11,267, the number of patients with a confirmed diagnosis is not collected.
In the following table we have provided the number of finished admission episodes (FAEs) for patients with a primary diagnosis of NF1 who were treated at the two national specialist centres in 2012-13, the most recent period for which data is available. An FAE is a continuous period of admitted patient care under one consultant within one health care provider. It should be noted the figures do not represent a count of patients, as a person may have more than one episode of care within the same stay in hospital or in different stays in the same year.
FAEs in 2012-13 for patients with primary or secondary diagnosis of NF1 (non-malignant)
| |
Trust | Numbers |
Central Manchester University Hospitals NHS Foundation Trust | 213 |
Guys and St. Thomas’ NHS Foundation Trust | 124 |
Source: Hospital Episode Statistics (HES), Health and Social Care Information Centre
Information concerning the number of patients waiting to be treated at the two national centres is not available.