Question to the Department of Health and Social Care:

To ask Her Majesty’s Government what plans they have to increase awareness amongst midwives and general practitioners of neurofibromatosis Type 1.

Neurofibromatosis Type 1 (NF1) patients are included within the remit of Dr David Bateman in his role as National Clinical Director for Chronic Disability and Neurological Conditions at NHS England.

There are currently no plans for awareness raising activity in relation to NF 1, which is an inherited condition. Information for the public on the diagnosis and treatment of NF1 can be found on the NHS Choices website, which sets out the key signs and symptoms of the condition, including: coffee colored patches on the skin, two or more neurofibromas (bumps on or under the skin); bone defects, such as bowing of the lower leg; and, a family history of NF1. The NF1 webpages can be viewed at the following link:

www.nhs.uk/conditions/Neurofibromatosis/Pages/Introduction.aspx.

More detailed information for general practitioners and other health professionals can be found on the National Institute for Health and Care Excellence NHS Evidence website:

www.evidence.nhs.uk.

This provides free access to quality health and social care evidence and best practice.