Question to the Department of Health and Social Care:
To ask His Majesty's Government, further to the Written Answer by Baroness Merron on 8 August (HL9823), whether the NHS uses the definitions of the Professional Records Standards Body for gender and gender identity.
The National Health Service has many longstanding Information Standards and IT systems which already include patient stated gender and gender identity data items, alongside phenotypic sex classification where required. These include the Personal Demographic Service and data sets such as the Mental Health Minimum Data Set and Commissioning Data Sets.
The Professional Records Standards Body (PRSB) has adopted the existing approved NHS Information Standards, rather than the NHS adopting the PRSB standards. Work is currently underway in response to the Sullivan Report and other clinical safety risks, to better define and separate sex and gender data items within the NHS Information Standards and systems area. The PRSB is engaged on this work and will align with such changes to Information Standards.
NHS England previously commissioned the PRSB to support the development of data standards that enable consistent and safe sharing of clinical and demographic information.
On the Core Information Standard, NHS England worked with the PRSB to define a minimum dataset for the exchange of key information between care settings. This standard was published and is available on the PRSB website, although it is not in itself a formal information standard.
On clinical information needed for direct care related to person characteristics and definitions for the NHS data model, the PRSB was commissioned to conduct discovery work with a wide range of clinicians from all specialties. These included Royal Colleges, patient-representative groups, and third sector bodies, which were engaged on the data items required for clinical care which relate to Sex and Gender Reassignment, as well as other provisions within the Equality Act such as ethnicity, sexual orientation, religion and philosophical belief, age, and disability.
NHS England has not engaged with the PRSB on the Unified Information Standard for Protected Characteristics (UISPC). This relates specifically to recording of data related to Protected Characteristics under the Equality Act 2010, to enable the NHS to monitor compliance with the Public Sector Equality Duty and address known health inequalities.
Once the UISPC report recommendations are made to the Department, Ministers will review and consider next steps, including how best to consult more widely.