Metachromatic Leukodystrophy
(asked on 15th December 2025) - View Source
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 2 December 2025 to Question 93697, if he will meet with representatives of ArchAngel MLD Trust, the MPS Society, MLD Support UK, the LSD Collaborative, and Alex – The Leukodystrophy Charity before responding to the UK National Screening Committee’s forthcoming recommendation on Metachromatic Leukodystrophy.
This question was answered on 19th December 2025
The Department of Health and Social Care has indicated that it will not be possible to answer this question within the usual time period. An answer is being prepared and will be provided as soon as it is available.