Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 2 December 2025 to Question 93697, whether he has made an estimate of the number of (a) preventable deaths and (b) cases of irreversible disability in children with Metachromatic Leukodystrophy over the last ten years; and how such outcomes are considered in UK National Screening Committee evaluations.

The Department of Health and Social Care has indicated that it will not be possible to answer this question within the usual time period. An answer is being prepared and will be provided as soon as it is available.