Question to the Department of Health and Social Care:

To ask the Secretary of State for Health, what representations he has received from charities and patient groups on access to the drug Translarna for the treatment of Duchenne muscular dystrophy; and if he will make a statement.

I met with the parents of children with Duchenne Muscular Dystrophy and Muscular Dystrophy UK, alongside the hon. Member for Winchester (Steve Brine) on 8 September 2015.

I also met with the Muscular Dystrophy Campaign (MDC) alongside the hon. Member for Leeds North West (Greg Mulholland) on 26 March 2015.

The former Minister of State for Care Services (Norman Lamb) met with the hon. Member for Blaydon (David Anderson) and a representative of the MDC group on 2 March 2015 where the issue of funding for Translarna was raised.