Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help improve access to (a) specialist healthcare, (b) information at diagnosis and (c) financial support for people living with Parkinson’s disease.

Integrated care boards (ICBs) are responsible for commissioning services that meet the needs of their population, including for Parkinson’s. In doing so, the Government expects ICBs to take account of the relevant guidelines and best practice in designing their local services. The National Institute for Health and Care Excellence’s guideline on Parkinson’s disease, code NG71, states that people with Parkinson’s should have an accessible point of contact with specialist services, which can be provided by a Parkinson’s nurse specialist, and that all individuals should be offered access to the services provided by these specialist nurses to support ongoing care and advice

NHS England has established a Neurology Transformation Programme, a multi-year, clinically led programme, which has developed a new model of integrated care to support ICBs to deliver the right service, at the right time for all neurology patients, including for those with Parkinson’s. This focuses on providing access equitably across the country, care as close to home as possible, and early intervention to prevent illness and deterioration in patients with long-term neurological conditions. A toolkit is being developed to support ICBs to understand and implement this new model, which will include components on delivering acute neurology services, improving health equity in neurology, and improving community neurology services.

NHS England’s Getting It Right First Time Programme for Neurology and RightCare Toolkit for Progressive Neurological Conditions aim to improve care for patients with Parkinson’s disease.

Parkinson’s Connect allows healthcare professionals to refer patients at the point of diagnosis directly to support that Parkinson’s UK offers, such as local support groups, a confidential helpline, and online learning resources.

The Diagnosis Connect service will directly refer patients to specialist charities at the point of diagnosis for personalised advice, information, guidance, and support.

The Department for Work and Pensions offers Personal Independence Payments (PIP) to individuals with health conditions or disabilities. However, there is currently no automatic entitlement to PIP in relation to a specific health condition, except in cases of people nearing the end of life.