Question to the Department of Health and Social Care:

To ask the Secretary of State for Health, what recent discussions he has had with charities representing people with Duchenne muscular dystrophy on the availability of the drug Translarna; and if he will make a statement.

I met with Muscular Dystrophy UK and the parents of sons with Duchenne Muscular Dystrophy, alongside the hon. Member for Winchester on 8 September 2015.

I met again with the Muscular Dystrophy Campaign (MDC) alongside the hon. Member for Leeds North West (Greg Mulholland) on 26 March 2015.

The former Minister of State (Norman Lamb) met with the hon. Member for Blaydon (David Anderson) and a representative of the MDC group on 2 March 2015 where the issue of funding for Translarna was raised.