Batten Disease: Diagnosis

(asked on 28th August 2020) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that there is no delay to the diagnosis of Batten Disease as a result of the covid-19 outbreak.


Answered by
Jo Churchill Portrait
Jo Churchill
Minister of State (Department for Work and Pensions)
This question was answered on 14th September 2020

The Government is committed to improving the lives of those affected by rare diseases such as Batten disease. NHS England as a direct commissioner of services and clinical commissioning group commissioners are currently working with all service providers to restore diagnostic capacity for all patient care groups. They will continue to look at what services can continue to be delivered successfully through virtual communication technology such as telephone consultation and videoconferences. Where services do need to be delivered face-to-face, including the diagnosing of new cases, NHS England will work with providers to ensure that patients have a safe journey through the hospital to the treatment area.

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