Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps he is taking to improve care for people with Huntington's disease.

The revised NHS England Specialised Neurology Services (adults) Specification 2025 outlines a comprehensive model of care, detailing the requirements for specialised neurology services but also outlining the expectations of a system wide approach. It articulates how patients should move into and out of specialised neurology services, including patients with Huntington’s disease, incorporating end to end pathways within an Integrated Neurology System.

The NHSE Specialised Commissioning Neurology Transformation Team (NTP) have also produced a number of guidance documents to support the implementation of the revised service specification. This includes developing a neurology transformation toolkit, which outlines the impact of care coordination and case management functions in supporting more equitable and efficient care for people with long-term neurological diseases, including Huntington’s disease.