Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve (a) awareness, (b) diagnosis and (c) clinical understanding of Bertolotti Syndrome within the NHS; and whether he plans to update NHS training materials or clinical guidelines to include reference to the (i) Jenkins LSTV classification system and (ii) other up-to-date approaches to the diagnosis and treatment of this condition.

We are committed to giving people with long-term conditions, such as Bertolotti syndrome, the support that they need, including referral to specialist services as appropriate.

While there are no current plans to update National Health Service training materials or clinical guidelines to include reference to the Jenkins LSTV classification system, we would expect all spinal surgeons in England to be aware of Bertolotti syndrome and possible treatment options. Decision making about the risks and benefits of a treatment option is a matter of clinical judgement and shared decision-making with the patient.

Healthcare professionals are responsible for ensuring that their own clinical knowledge remains up-to-date, and for identifying learning needs as part of their continuing professional development.

Our recently published 10 Year Health Plan presents a significant opportunity to revolutionise care for people with conditions like Bertolotti syndrome by shifting from hospital-centric care to community-based and preventative approaches to manage or reduce symptoms, alongside digital advancements. The plan focuses on earlier intervention, improved access to care, and better integration of services to address the challenges faced by individuals with long-term conditions like Bertolotti syndrome.