Rare Diseases: Drugs
(asked on 1st March 2017) - View Source
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health, if he will publish details of the process leading to the review by NHS England's Clinical Priorities Advisory Group of commissioning of medicines for rare diseases in 2017-18.
NHS England considers the commissioning of medicines for rare diseases as they would any treatment for any condition. The process for developing clinical policies for treatments is published on the NHS England website:
In addition, NHS England recently undertook a consultation on the process for prioritising treatments that required investment, and the response to that consultation is published here:
A recent consultation exercise has also been undertaken to consider NHS England’s ‘generic policies’ that consider decision making of treatments outside the annual investment prioritisation process. The outcome of that consultation will be published at a later date once the responses have been fully considered.