Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 27 September 2022 to Question 51448 on Muscular Dystrophy: Research, whether the National Institute for Health and Care Research has plans to undertake research into the (a) cause of and (b) potential treatments for (i) Distal Myopathy-5 and (ii) ADSSL1 Myopathy.

It is not usual practice for the National Institute for Health and Care Research (NIHR) and other research funders to ring-fence funds for expenditure on particular topics. Research proposals in all areas compete for the funding available. Applications are subject to peer review and judged in open competition, with awards made based on the importance of the topic to patients and health and care services, value for money and scientific quality. Research into the cause of and potential treatments for Distal Myopathy-5 and ADSSL1 Myopathy would be subject to a successful bid for the NIHR’s research funding.