Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what research is being undertaken into the (a) cause of and (b) potential treatments for Distal Myopathy-5 and ADSSL1 Myopathy.

The Department funds the majority of research through the National Institute for Health and Care Research (NIHR). The NIHR has not funded any research into the cause and potential treatments for Distal Myopathy-5 and ADSSL1 Myopathy in the last five years.