Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether his Department has made an assessment of the potential impact of allowing Chinese researchers access to medical records held by UK Biobank on national security.
The public’s data must be used lawfully, with respect, held securely and with the right safeguards, encompassing legislative requirements, security standards and toolkits and advice from independent advisory bodies.
Participants who consent to share their data with UK Biobank are informed that information and samples from UK Biobank participants will be available only to researchers who have relevant scientific and ethics approval for their planned research. This could include researchers who are working in other countries.
The National Health Service provides data to Biobank in line with patients’ direct wishes and to support this lifesaving and life changing research. UK Biobank has contractual agreements with NHS England that UK Biobank can only use the data provided by NHS England in line with the consent patients have provided and in compliance with the UK General Data Protection Regulation. NHS England carries out audits and other assurance reviews of organisations it has contracts with, including of international data access processes and compliance with legislation.
Beyond this, through the delivery of the UK Biological Security Strategy, the Government is committed to ensuring the United Kingdom is resilient to a spectrum of biological threats and a world leader in innovation by 2030. As part of the strategy, the Government is undertaking a programme of work to mitigate the potential risks associated with biological data, to protect our burgeoning bioeconomy and build domestic confidence in sharing personal data to improve health outcomes.