Question to the Department of Health and Social Care:
To ask the Secretary of State for Health, whether (a) a referral or (b) an appointment for an autism diagnostic assessment is captured in published mental health data (i) locally and (ii) nationally.
To support local areas in addressing long waits, NHS England, supported by the Department and the Association of Directors of Adult Social Services, initiated a series of visits to clinical commissioning groups and local authorities. These visits aimed to develop a better idea of the challenges in securing timely autism diagnosis across all ages, looking at the variability in diagnosis times and sharing good practice to help areas to improve their service. NHS England submitted a report on the visits to the 16 June meeting of the Cross Government Autism Programme Board, which includes representatives of autism third sector organisations and people who have autism. NHS England will have further discussions with relevant organisations over the summer about actions in their report, including on the Clinical Commissioning Group Improvement and Assessment Framework, before reporting back to the Autism Programme Board.
In parallel, as recommended by the independent Mental Health Taskforce, the Department is undertaking a five year plan for the development of mental health data to be published by the end of the year. The plan will set out future requirements and timings for developing data to inform pathways of care, which will include requirements for autism in the Health and Social Care Information Centre Mental Health Services Data Set. Data on referrals or appointments for an autism diagnostic assessment are not currently captured in published mental health data.