Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps he is taking to raise awareness of Epidermolysis Bullosa in (a) the NHS workforce and (b) the health research sector.

The 2021 UK Rare Diseases Framework aims to improve the awareness of all rare diseases, including Epidermolysis Bullosa. England’s Rare Diseases Action Plan, published in February 2022, sets out how we will increase knowledge and improve the resources available to health care professionals. This includes education and training programmes and developing innovative digital resources, which are integrated into existing digital platforms or websites to provide easily accessible information on rare diseases, such as Epidermolysis Bullosa.