Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, who the designated board-level executive leads are for Down Syndrome in each ICB in England.

It is the responsibility of integrated care boards (ICBs) to make information public about executive leads for Down syndrome in England. In accordance with statutory guidance published by NHS England on 9 May 2023, ICBs should be open and transparent about who holds these roles and should make this information publicly available. We are giving systems greater control and flexibility, and it is for individual ICBs to decide how to publicise these details.

The statutory guidance sets out NHS England’s expectations about fulfilling executive lead functions and outlines the responsibilities of these roles in more detail, and is available at the following link:

https://www.england.nhs.uk/publication/executive-lead-roles-within-integrated-care-boards/