Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of NHS support for people with (a) cirrhosis, (b) genetic conditions and (c) other liver conditions in (i) Beckenham and Penge constituency and (ii) the rest of England.
The Government is committed to improving the lives of those living with rare diseases, such as rare, genetic liver conditions.
Since June 2022, 42 integrated care boards (ICBs) across England have been responsible for arranging healthcare services in the National Health Service which meet the needs of their respective populations. The ICB responsible for arranging healthcare services for Beckenham and Penge would be NHS South East London ICB. This ICB is the best placed to understand the policies and arrangements in place for the provision of local NHS healthcare services, including for most liver condition services which are delegated to ICBs.
NHS England commissions a specialist paediatric liver service from three hospitals Birmingham Women's and Children's Hospital NHS Foundation Trust, King's College Hospital NHS Foundation Trust and Leeds Teaching Hospitals NHS Trust. This service provides assessment, diagnosis and management of children with all forms of liver disease. This includes provision of emergency, elective and planned care.