Idiopathic Pulmonary Fibrosis

(asked on 22nd July 2014) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health, what steps his Department is taking to raise awareness of idiopathic pulmonary fibrosis among healthcare professionals.


Answered by
 Portrait
Jane Ellison
This question was answered on 1st September 2014

Information for both health professionals and patients about idiopathic pulmonary fibrosis (IPF) is available on the National institute for Health and Clinical Excellence (NICE) website at the following link:

www.nice.org.uk/Guidance/Conditions-and-diseases/Respiratory-conditions/Pulmonary-fibrosis

A guideline for IPF and a NICE Technology Appraisal for Pirfenidone as a treatment for IPF are available and an IPF Quality Standard is currently in development.

The British Lung Foundation also offers advice which can be found at:

www.blf.org.uk/Search?query=idiopathic+pulmonary+fibrosis

Patient and public voice members are represented on the Specialised Respiratory Clinical Reference Group. Details can be found at:

www.england.nhs.uk/ourwork/commissioning/spec-services/npc-crg/group-a/a14/

The NHS standard contract for interstitial lung disease makes reference to the additional roles that specialist centres providing care have in relation to patient education and patient support groups.

www.england.nhs.uk/wp-content/uploads/2013/06/a14-respiratory-inters-lung.pdf

Reticulating Splines