Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of the provision of specialist services for people with Chronic Fatigue Syndrome.

‘My Full Reality’, the cross-government Interim Delivery Plan on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) was published on 9 August 2023. The Plan aims to improve experiences and outcomes for people with ME/CFS by setting out agreed actions to drive an expansion of research, better education of professionals, improvements in attitudes towards the condition, and improvements to service provision. Alongside the Plan we have published an eight-week consultation to build a picture of how well the Plan meets the needs of the ME/CFS community, and to highlight any significant gaps where further action may be necessary. The Plan and consultation are available at the following link:

https://www.gov.uk/government/consultations/improving-the-experiences-of-people-with-mecfs-interim-delivery-plan/my-full-reality-the-interim-delivery-plan-on-mecfs

We have made no assessment of the implications of the report published by Action for ME, ‘Implementation of the NICE Guideline [NG206] on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in England’, the adequacy of implementation of the National Institute for Health and Care Excellence (NICE) guideline on ME/CFS, or on the provision of specialist services for people with ME/CFS.

Integrated care boards (ICBs) are responsible for commissioning services for people with ME/CFS to meet local needs. In making commissioning decisions, we would expect ICBs to consider guidelines published by NICE.