Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the adequacy of specialist care for people with (a) hypermobile Ehlers-Danlos syndromes and (b) hypermobility spectrum disorders.
General rheumatology services, which support people with a range of conditions, including hEDS and HSD, are locally commissioned by integrated care boards which are best placed to make decisions according to local need.
Rheumatologists have knowledge and familiarity with hypermobility and related conditions. Other clinicians, such as general practitioners and expert physiotherapists, are being empowered to identify and diagnose the condition through the use of validated approved clinical guidelines and toolkits. This should help to reduce delays in diagnosis.