Question to the Department for Science, Innovation & Technology:
To ask the Secretary of State for Science, Innovation and Technology, what regulatory framework is in place for foreign parties that access and utilise human genetic resources when operating in the UK.
Organisations which hold human genetic data are subject to the UK General Data Protection Regulation (GDPR). In addition, Genomics England, UK Biobank and NIHR BioResource actively consider national security in decision making about partnerships with companies overseas. These organisations consulted with security personnel on a regular basis to ensure partnerships are aligned with our national security interests.
The Human Tissue Authority, a non-departmental body of the Department for Health and Social Care, is the independent regulator of organisations that remove, store and use human tissue for research, medical treatment, post-mortem examination, education and training, and display in public. It enforces the Human Tissue Act 2004 which regulates the removal, storage and use of human tissue.