Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, for what reason there is no national service specification for ceroid lipofuscinosis type 2 (CLN2).

The NHS England service specifications for Metabolic disorders (children) and Metabolic disorders (adults) both include ceroid lipofuscinosis type 2 (CLN2). These can be found on the NHS England website at the following links:

https://www.england.nhs.uk/wp-content/uploads/2013/06/e06-metab-disorders-child.pdf

https://www.england.nhs.uk/wp-content/uploads/2013/06/e06-metab-disorders-adult.pdf