Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, with reference to the UK Rare Disease Framework, what steps he plans to take to engage with the rare blood cancer community to improve care coordination for people living with mycosis fungoides and Sézary syndrome, two subtypes of Cutaneous T-Cell Lymphoma, a rare blood cancer.
We will continue to engage with a range of stakeholders, including the rare blood cancer community, before publishing action plans that outline how the priorities and underlying themes in the Framework will be addressed.