Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if he will engage with the rare disease and blood cancer communities to ensure that rare conditions such as mycosis fungoides and Sézary syndrome, two subtypes of skin lymphoma, are considered when drafting the UK Rare Disease Framework national action plans.

The Government is committed to ensuring that the UK Rare Disease Framework is a success and will continue to engage with a range of stakeholders before publishing action plans that outline how the priorities and underlying themes in the Framework will be addressed.