Cystic Fibrosis
(asked on 1st June 2018) - View Source
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what estimate his Department has made of the cost to the public purse of treating people with cystic fibrosis in each of the last five years.
No specific estimate has been made, though some data are collected through the NHS Reference Costs data collection, which provides the average unit cost to the NHS of providing defined services to National Health Service patients in England in a given financial year. The following table shows the estimated total cost of treating cystic fibrosis within secondary care in each of the last five years.
Year | Estimated total cost in secondary care (£ million) |
2012-13 | £84.8 |
2013-14 | £102.0 |
2014-15 | £105.6 |
2015-16 | £107.8 |
2016-17 | £105.7 |
Source: NHS Improvement Reference Costs
Note:
For children with cystic fibrosis there are two models for the delivery of care:
- Full care delivered entirely by a specialist cystic fibrosis centre; and
- Shared care delivered by a network cystic fibrosis clinic, which is part of an agreed designated network with a specialist cystic fibrosis centre. The network cystic fibrosis clinic is linked to and led by a specialist cystic fibrosis centre. Named providers for network clinics were collected for the first time in 2012-13.