Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if he will publish a response to Early Day Motion 883, Campaign for an Osteogenesis Imperfecta national awareness month.

While we have no specific plans to officially recognise May as the national awareness month for osteogenesis imperfecta, the UK Rare Diseases Framework aims to improve the awareness of all rare diseases. England’s Rare Diseases Action Plan, published on 28 February 2022, sets out specific actions to increase knowledge and improve the resources available to health care professionals. This includes education and training programmes and developing innovative digital resources, integrated into existing digital platforms or websites to provide easily accessible information on rare diseases. Action plans from the devolved administrations will follow later in 2022.