Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if he will make funding available for a national screening trial for genetic haemochromatosis.
No funding has been made available for a national screening trial for genetic haemochromatosis as the UK National Screening Committee (UK NSC) does not commission trials for screening. This would be a consideration for the National Institute for Health Research to consider.
The UK NSC reviewed the evidence to introduce screening for Haemochromatosis in 2021 and recommended that a population screening programme should not be introduced. The UK NSC reported on the gaps in the evidence base so others might set up research trials to advance the development base for this condition.