Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether the current Chair of the adult clinical reference group for adult gender dysphoria services refused to comply with requests for data for the date linkage study which was recommended by the Cass review.
It is well documented that a number of adult gender clinics were unwilling to collaborate with data sharing requests made of them previously, in respect of the data linkage study, and that this meant that the data linkage study was unable to proceed at the time. Further engagement with a range of stakeholders has since led to small but important proposed improvements in study design. These have been subject to positive feedback from representatives of commissioned adult gender clinics and should support collaboration on data sharing once the necessary research approvals are in place to enable the study to begin. Given the importance of this study as part of the wider national gender research programme, the Department will continue to closely monitor progress in partnership with NHS England and consider whether any further support is required to enable study delivery.