Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether lipoedema has a diagnostic code within NHS data systems; what steps he is taking to improve the collection of data on prevalence, diagnosis and outcomes for people with lipoedema; and what assessment he has made of the potential impact of improved data collection on future commissioning and service planning.

Lipoedema does not currently have a unique standalone diagnostic code within the National Health Service’s primary coding systems. In clinical practice, it is often recorded under broader World Health Organization International Classification of Diseases Tenth Revision categories relating to disorders of subcutaneous tissue or lymphatic disease.

NHS England is taking forward a wide programme of work to improve how data is recorded and coded across the health service by expanding the use of modern electronic patient record systems, strengthening national coding standards, and supporting staff to record information consistently and accurately. This includes better use of SNOMED CT in primary care, clearer guidance for hospitals, and investment in shared care records so that patient information is captured once and used safely across services. These improvements are helping to ensure that clinical data is more reliable, more complete, and better able to support high‑quality care, earlier diagnosis, and effective service planning.