Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of establishing a national register to capture and integrate the data of all women at increased risk of breast cancer.

The National Disease Registration Service (NDRS) in NHS England provides England’s national resource for data and analytics on cancer, rare diseases, and congenital conditions.

The NDRS already serves as a national register for women at very high risk of breast cancer. NDRS curates and quality assures the collected data to ensure sufficient accuracy and completeness. The NDRS works closely with the very high risk National Breast Screening Programme to ensure safe and robust identification of women at very high risk of cancer. The integration of this data within the wider NDRS cancer data infrastructure maximises the use of this data which helps with service planning, evaluation, and improvement, and reduces the fragmentation and siloing that would occur with standalone registers.