Hormone Pregnancy Tests

Yvonne Fovargue Excerpts

Tuesday 23rd April 2019 Westminster Hall

[Yvonne Fovargue (Makerfield) (Lab)]

I congratulate my hon. Friend the Member for Bolton South East (Yasmin Qureshi) on securing this debate, and on all the work she has done on this subject.

In the small geographic area of Makerfield, I probably have the most constituents affected. There are at least eight, including Marie Lyon, who has been a wonderful chair of the Association for Children Damaged by Hormone Pregnancy Tests and a tireless campaigner. Whenever I have tried to speak to Marie about any issues, she has been restricted by an incredibly strict gagging agreement. I have asked questions and she has said, “I can’t answer that. I can’t mention that. I can’t give you any information about that.” Why can she not give me, her Member of Parliament, the information that I need?

Minutes of meetings have been recorded, but were destroyed straight after. Marie has told me that they do not reflect her notes. Positive comments have been left out, and some of the minutes have been changed after her intervention. That is surely not normal practice.

I have heard the same story as many of my hon. Friends here: constituents were given tablets from an office drawer in the doctor’s desk. The women have lived with the consequences and the guilt of taking the tablets. One mother was told that her son’s severe mental and physical disability was probably her fault, and she had no more children. That has stayed with me, because she said to me, “We have such a lot of love to give.” She and her husband, who has sadly died, dedicated their lives to looking after their son. She is now worried about what will happen when she is gone, and that is why it is so important that we get to the truth. We want proof that she has been let down by the people she trusted. The statement made on behalf of the MHRA that families could already have had previous congenital abnormalities is appalling. The statement was made by a representative who had worked with a leading member of the expert working group and who would have been aware of his conclusions. Again, it raises issues about impartiality, independence and people who all know each other working together.

Women already blame themselves, and that is simply reinforced. Throughout the whole sorry affair, attempts have been made to shift the blame to women. It has been said that they did not want to be pregnant and used the tablet as a means of aborting. That was emphatically not the case with my constituents, who were delighted to think they could be pregnant. The study clearly places the blame where it should lie: with the manufacturers and distributors of Primodos, who were aware of the potential effects of the drug long before it was withdrawn in the UK. It was not withdrawn for commercial reasons, and the withdrawal of the indication of pregnancy was strongly requested by the Standing Joint Committee, which threatened to take Primodos off the market if the indication was not removed.

Looking at the review, I believe Professor Heneghan fully answered all the questions. His persistence shows how much he believes in the conclusions in his review, and in a demonstrable link between hormone pregnancy tests and foetal abnormalities, which obviously differ depending on the stage of development at which the test was administered. The families have been failed throughout the process, right from the moment that they were given the pill, often from the doctor’s desk drawer. There is now an opportunity to give some peace of mind and redress to the families, but yet again there is a cloak of secrecy and obstruction, and they feel let down by the agencies in place to protect them.