Long Covid

Viscount Stansgate Excerpts

Thursday 17th November 2022 Lords Chamber

[Viscount Stansgate (Lab)]

My Lords, I thank my noble friend Lady Thornton for having secured the debate, to which I am very pleased to make a short contribution. There will be many tens, if not hundreds, of thousands of people and their families up and down the country who will be grateful to her for having given them the opportunity to have their experiences of what we call long Covid both explored and legitimised. Many interesting points have been made in the debate. I was struck by the reference of the noble Lord, Lord Bethell, to the economic impact, which is staggering and a point to which I will return. The House may know that there was a debate in the other place about long Covid six months ago, so it is high time that we had our own debate here today.

My first main point is that the outcome of the debate will be, I hope, that we agree on the need: for more research into all aspects of Covid, including long Covid; and to explore the link that may exist between long Covid and the recent exit from the UK workforce of so many people. I remind the House that it was the brilliance of scientific research, including research conducted in this country, that enabled the vaccines to be developed from which we have all benefited. Now we have the challenge of long Covid. One way of thinking about it is to say that it is the persistence of symptoms in those who have had, and thought that they had recovered from, Covid. It is interesting that the majority of people with long Covid are PCR-negative, which indicates microbiological recovery, although the chronic symptoms extend beyond 12 weeks. In other words, long Covid is the time lag between the microbiological recovery and the clinical recovery.

By May or June last year, some of the most commonly reported symptoms included the following: fatigue, cough, chest tightness, breathlessness, palpitations, myalgia, and a difficulty to focus. I will illustrate that with some direct evidence that I have received from long Covid sufferers. A person who fell ill with Covid in the first wave in 2020 wrote:

“I was knocked sideways by it. I have never been so ill.”


They were

“bed-bound for 2 weeks, coughing badly for 2-3 months thereafter. Feeling weak and frail.”

Now I want to introduce your Lordships to the concept of brain fog. Let me again use the words of another sufferer:

“Brain fog came on insidiously after an initial period of recovery. Unaware of it at first, but slowly it engulfed me.”


They

“had no name for what was happening … for a long time”,

and it was a

“relief when others started naming it and talking about it”.

This is where today’s debate comes in. It will be very helpful for people to know that their symptoms are being recognised. I have received a long list of some of the symptoms, which I am sure that many of your Lordships will recognise: the inability to write or concentrate; a short attention span, forgetfulness, memory loss, word lapses, sleep problems, eye problems, balance problems; a terrible sense of brain congestion, of which one person wrote that it felt

“sometimes as if my head would split”;

exhaustion, weariness, and others. Someone said:

“My vocation is gone and I am unable to write. As though a door has shut in my brain and I cannot work.”


Another mentioned:

“A desire to flee from company and crowds. I now avoid outings where possible. I am de-coupling from life.”


It is worth noting that many of those who suffered from long Covid did have vaccinations and boosters.

I understand that some people have taken private action to secure the drug ivermectin and that it had a beneficial effect in some cases, albeit for a short time. I mention that because I tabled Questions to the Minister’s department earlier this year about that drug, and I would be grateful to know what the department and Minister’s current views are about it.

This is not the debate in which to refer to the cuts in public expenditure announced by the Chancellor in another place while we have been sitting here, but of course cutting back on science research would fatally undermine research efforts. I hope that the Minister will be able to reassure the House today that the Government will protect the £50 million that is being invested in long Covid, as set out by the National Institute for Health and Care Research. As I understand it—I am grateful to the Library for this information—the NIHR has published its latest themed review, entitled Researching Long Covid: Addressing a New Global Health Challenge, in which it refers to: three studies considering who gets it and why; two studies looking at the biological causes; three studies looking at the diagnosis; four studies evaluating treatments; three studies considering recovery and rehabilitation; one study looking at the impact of vaccination; and two studies looking at how health services can treat the condition and the health and economic costs of the disease.

That brings me to my second major point, which I will have to truncate. What is the link between long Covid and the people who have left the workforce? As has been referred to, the Office for National Statistics has published several articles. Time does not permit me to give all the details, but it is clear that a huge proportion of those in the age bracket of 60 to 65 are unlikely to return to work, and the pandemic has affected decisions to leave the labour market. The report published in July 2021 by the ONS listed some of the major reasons that workers cited for not returning. Research by the Health Foundation indicates that economic inactivity in the UK has increased by about 700,000 people since before the pandemic. That is an absolutely enormous number, and the cost to the UK will be very great. It seems as though we are living through a pandemic of inactivity, as it were. The Health Foundation report concludes that

“these contributing factors are exacerbating a pre-pandemic trend of the increasing prevalence of poor health as a reason for inactivity”.

I will end there. We certainly need more research, and I hope that this debate might have what I might call a catalytic effect both on the discussion of long Covid and on the reply from the Minister.