Haemochromatosis Screening

Debate between Torcuil Crichton and Patricia Ferguson

Wednesday 25th June 2025 Commons Chamber

[Torcuil Crichton]

I do not disagree with that. Screening would be revolutionary. It would save money for the NHS in the short term and the long term, and, more important, it would save lives and put us two decades ahead of the rest of the world in preventive medicine. It would be transformative for my constituency. It would be radical, but only as radical as plans to offer every baby in the UK whole genome sequencing within a decade, a plan backed by the Health Secretary. Genomics, like these tests, would put us on the front foot in preventive medicine, as the Minister well knows. Of course it would cost money—£650 million is earmarked for the boost to genomics by the Department of Health and Social Care—but a smaller and more defined pilot scheme to lead the way in preventive medicine is to hand with the samples of high levels of HCT in the Western Isles. Given the given the cost per head of screening, it is logical that starting in the places with the highest rate of faulty genes would be the most cost-effective option.

Initially at least, the Bill ought not to go to the national health service. The bill for gene testing in the Western Isles should be part of the community payback for the large-scale wind farm developments that are planned for the islands. There are already negotiations for community benefits, community funds and community shares in the many planned wind farm developments in rural Scotland. The renewables revolution is about saving the planet, but right now the consumer offer is simply to reduce bills. By properly harnessing the wealth of wind, we can not only make communities better off but transform the life chances and health chances of people and their children.

The Viking genes results are not limited to haemochromatosis; they also showed high levels of hypercholesterolaemia in the Western Isles. That is simply inherited high cholesterol —a gene fault—that leaves many islanders, and many of my constituents, with high cholesterol and many with heart conditions, which again could be avoided with predictive medicine and early lifestyle and diet changes.

[Patricia Ferguson (Glasgow West) (Lab)]

My hon. Friend makes an excellent point about the need to test in the Western Isles, and his solution of using the community payback from wind farms is an excellent idea. Would he want to go further thereafter and test more widely? My brother has haemochromatosis, and it was discovered completely by accident. The rest of the family were then tested, and one or two cousins were found to have it, although I fortunately do not. It is much more prevalent than any of us ever imagined, and I had never heard of it until my own brother was diagnosed.

[Torcuil Crichton]

My hon. Friend anticipates much of the remainder of my argument. As I said, the research and DNA testing in the islands could and should be paid for by community funds from large-scale renewable projects, just as similar screening projects proposed for Orkney and Shetland could be paid for by funding from wind farms there. From those discrete samples, much learning could be had, and then sampling and testing could be rolled out across not just the rest of Scotland but the rest of the UK.

Luckily for me, my siblings and I were spotted early but, as I said, if left untreated and undiagnosed this gene can lead to serious arthritic symptoms, liver cancer and heart disease, the consequences of which are often attributed to other conditions and lifestyle factors but could have been easily prevented by testing. Given the resources, we could test for a wide range of conditions and help this generation and future generations of islanders to live healthy lives. As my hon. Friend the Member for Glasgow West (Patricia Ferguson) said, if it works for a small, discrete population—there are only 21,000 adults in the island chain—the experience and lessons learned could be rolled out across the UK.

I know, as we all know, that health services in Scotland do not fall within the ambit of the Minister, but the future of healthcare is in all our hands, and I urge UK Ministers and their counterparts in Holyrood to seriously consider a pilot screening study in the Western Isles. There is a clearly identifiable risk from haemochromatosis, and we should use the lessons from that screening to roll out haemochromatosis screening across the rest of the UK.

Scotland’s Architectural Heritage

Debate between Torcuil Crichton and Patricia Ferguson

Tuesday 5th November 2024 Westminster Hall

[Torcuil Crichton]

I thank my hon. Friend for the point that Glasgow is a cultural lighthouse and a beacon, although much decayed in present days, as he has noted. Its buildings do speak to the world, and hopefully will again when the Mack is restored.

Winston Churchill said:

“We shape our buildings and afterwards our buildings shape us.”—[Official Report, 28 October 1943; Vol. 393, c. 403.]

The Mack and Glasgow School of Art has certainly done that. It is a 20th century dynamo that has produced some of the most talented British artistic practitioners we have seen. Doctor Who went to Glasgow School of Art in the shape of Peter Capaldi, who is my favourite Doctor. Coincidentally, my good friend Annie Grace, a piper who was also at Glasgow School of Art, is sharing the stage with another Doctor, David Tennant, in the west end production of “Macbeth”. It is not just the previous students we have to think about.

[Patricia Ferguson (Glasgow West) (Lab)]

Having gone to school next door to the Mack, it holds a great place in my heart. I also worked next door to it for a time, so it was rooted in my life when I was growing up. It is incredibly sad to see what has happened to it, not only because of its architecture but because of what it has meant to generations of Glaswegians and of art students who have gone through its doors.

It is also disappointing to see, as my hon. Friend mentioned, the other examples of where we in Glasgow are not looking after our heritage in the way we should. The ABC cinema was also affected by the fire at the Mack, and just today, it was reported that some elements of it, which were meant to be retained, have been skipped, to use the vernacular. It is disappointing that we are in this situation and that Glasgow, which once respected its heritage, now seems to be ignoring it.

[Torcuil Crichton]

I think my hon. Friend was referring to Charles McNair’s portico in the ABC cinema, which has sadly been demolished. She spoke of generations of art students, past and present. It is for the educational experience of future students and those currently undergoing their studies at Glasgow School of Art that we should take cognisance of what is happening. They should not be overlooked.

In the years following the fire and in the absence of the Mack—the beating heart of the school—students were dispersed across the campus estate to workshops and exhibition spaces. That removed them from the concentrated network of experience that makes art education so enriching. It is essential that the building is restored so that generations more artists and students can feel the vibrancy and alchemy of Mackintosh’s masterpiece.

Despite a global outpouring of support and donations after the first fire, the restoration project following the second fire suffered a series of setbacks, and those setbacks only fuel the anger, pain and frustration of all those who love the Mack. A report by the Scottish Fire and Rescue Service published two years ago concluded that the 2018 blaze was so fierce and all-consuming that the cause might never be known.

Earlier this year, the art school, which is frustrated, as is everyone who loves the Mack, initiated an arbitration process with the insurers over what the hon. Member for North East Fife (Wendy Chamberlain) might describe as an act of God. It is a complex case and a complex claim. It does not take in the whole insurable cost of the building, but it has been slow and has brought the restoration to a halt until the case is resolved.

In 2023, the art school management also had to abandon its search for an architect to lead the restoration. The meter, of course, is running on that restoration because of a flaw in the procurement process, but thankfully, the GSA board is working on a fresh business case, which will consider the economic and cultural impact of the art school not just on Glasgow but on the rest of Britain and on the world. It will also take into account the pressures of the modern era—the rising cost of living, the pandemic and wars—and the effects they have on the cost of construction and particularly the cost of heritage reconstruction.

I am told that revised costs and completion dates will not be available until early 2025. Leading architects, politicians—such as my good friend Paul Sweeney MSP, formerly of this House—and heritage experts have expressed dismay at the lack of progress. They fear, as do many others who have the best interests of the art school at heart, that the project is faltering. The Mack is a landmark of national importance, and we are all collectively the custodians of it.