World Autism Awareness Week

Tom Tugendhat Excerpts

Thursday 28th April 2016 Commons Chamber

[Patricia Gibson (North Ayrshire and Arran) (SNP)]

I, too, would like to add my voice to the clamour—the chorus—of appreciation to the right hon. Member for Chesham and Amersham (Mrs Gillan) not just for securing this debate, but for all the work she has done in this area over the years.

This subject is very close to my heart. I speak as a former teacher of English for more than 20 years who witnessed at first hand some of the challenges and obstacles that young people living with autism face. This debate is important not just because of the challenges that those living with autism have to cope with, but because of the isolation and the sometimes bullying and judgmental attitudes they face from a society that too often simply does not comprehend the condition. That is why we all—there is consensus on this—need to work hard to raise not just awareness of the condition, but understanding of it. In the long term, society’s lack of understanding can leave an individual with autism emotionally scarred, and in the longer term it can lead to difficulties accessing employment and the means to a fulfilling life.

The scale of those affected by the condition is significant. It is thought that more than one person in every 100 may be autistic, and behind each individual case, as we have heard, are families, loved ones and friends who also live with the condition. A study in 2008 revealed that as many as 71% of children with autism also live with a mental health condition, such as anxiety, depression or obsessive compulsive disorder. The Association of Graduate Careers Advisory Services found that 26% of graduates on the autism spectrum are unemployed. That is by far the highest rate of any disability group and more than double the average unemployment rate for disabled adults. Although figures are hard to establish, it is thought that only 15% of autistic adults in the UK are in full-time work. A large-scale study in The British Journal of Psychiatry in November 2015 found that people with autism are more than twice as likely as their peers in the wider population to die prematurely.

It is important to recognise, as we have heard today, that no two people with autism are the same. There is a whole spectrum within the condition, which may explain the gaps in the understanding of it among the wider population, but we know that it can be quite debilitating for the individual involved, as well as his or her family, if they suffer from it with any severity. Progress has been made, but it is important that as much work as possible continues to be undertaken to promote, as I have said, not only awareness but understanding. Recent work undertaken by the National Autistic Society found that only 16% of autistic people and their families felt that the general public had a meaningful understanding of the condition.

I believe that folk, on the whole, at heart are decent. If we can help to raise awareness and understanding of the condition—this debate is a small part of that—the wider public will display more sensitivity, more kindness and more compassion towards those living with this condition.

[Tom Tugendhat (Tonbridge and Malling) (Con)]

I welcome the hon. Lady’s speech, and she speaks with great passion and eloquence. Does she also welcome the fact that schools do so much not only to improve the understanding in the local community, but to help their children who are on the autism spectrum to interact with the world as it is? Much is being done by schools such as Grange Park School in my constituency and, I am sure, by schools in the hon. Lady’s constituency.

[Patricia Gibson]

I take on board the hon. Gentleman’s important point. We have heard today that in some schools, there is a deficit of understanding and a deficit of support, but there are also excellent examples of teachers who have had thorough training in autism, who can support children in a specialised way and help them to access the curriculum in a meaningful way that would not otherwise be possible. We must recognise that and share such good practice, wherever it exists, around the UK.

When we raise understanding of autism, we will help to remove the shadow of loneliness and isolation that, far too often, those living with autism and their families experience. Loneliness and isolation have a negative impact on the general health and wellbeing of those affected by them, and loneliness is considered to be as damaging to health as smoking. That brings into sharp focus the importance of such work.

Before I finish, I want to pay tribute to the work that is being done in in my constituency. During the Easter recess, I attended an event in Ardrossan library—I attended a similar event last year—where people with autism and their families come together to share stories about the challenges that they face and the coping strategies that they use. I pay tribute to Suzanne Fernando, who organises those events and does so much to promote understanding of autism. I am quite proud of the work that is going on in Scotland. The Scottish Government have launched the Scottish strategy for autism, through which they have put the issue on the agenda, raised awareness of it and put resources into it. When children, young people and adults with autism lose out, they are a loss to our society, and we need to be more inclusive and mindful of that.