Autism

Debate between Tom Clarke and Cheryl Gillan

Tuesday 20th November 2012 Commons Chamber

[Mrs Gillan]

Certainly one way to maximise the potential of people with autism is to follow such examples of good practice. The all-party group might want to address these issues in the future. If we want to be hard-nosed about this subject, we could refer to a National Audit Office report published when the Autism Act 2009 was going through this House, which showed that if local services identified and supported just 4% of adults with high-functioning autism and Asperger’s syndrome, the outlay would become cost-neutral over time, and if they did the same for just 8% of such adults, that could save the Government some £67 million a year.

I worked very closely with the NAS during the passage of the Autism Bill, so I know that it strongly supports the Government’s proposed reforms to the special educational needs system. It especially welcomes the introduction of joint co-operation and commissioning duties, the extension of SEN law to cover academies and free schools, and the education, health and care plans for young people up to the age of 25, which will replace the statements.

The NAS has raised some concerns, however, and it speaks from a position of great strength. It runs seven schools for children with autism, and it is setting up an autism free school—in our area, Mr Speaker, of the Thames valley. The new NAS Anderson school in Bristol works with children to address the challenges they face, with the specific aim of helping them move back into community-based mainstream provision. The NAS knows from experience that these new schools are set up in response to great local need and are anchored in their communities. It is essential that children with complex needs can have access to such independent special schools, but I understand there is some concern that under the new system parents may not be able to express a preference for such schools in an education, health and care plan. I urge the Minister to ensure that such schools can be accessed by those who need them.

This debate has focused on the SEN reforms, but the Autism Act 2009 was borne out of a recognition that the specific needs of adults with autism were often overlooked by service designers at the local level and therefore they consistently missed out and did not get the help they needed. Unfortunately, that is reflected in recent NAS research. Some two-thirds of adults with autism are not getting the help they need.

It is vital that we get education provision right. Local authorities must ensure that they not only educate themselves, but implement the Department of Health adult autism strategy in a way that addresses local needs. In working with young people with autism and their families, local authorities must plan at the strategic level for local services and develop individually tailored plans to ensure that children with autism are supported into adulthood and can enter employment and live independently in our communities.

The adult strategy will be reviewed in 2013. That gives us an important opportunity to consider these matters. It also gives us a chance to celebrate improvements —there have been improvements—but we must not ignore the fact that there is still so much more that we need to do. I particularly urge the Minister to take on board the fact that he needs to work with his colleagues at the Department of Health and the Department for Work and Pensions, and with many others, including Members of this House, to ensure that the proposals to reform SEN are fully linked to the work on the autism strategy.

[Mr Tom Clarke]

I am grateful to the right hon. Lady, who has done so much in this field, for giving way. On that point, does she agree that there is something wrong? We have been reminded that only 15% of people with autism are in full-time jobs and only 6% are in part-time jobs, which represents a loss of talent that is wrong not only for the individual but for society.

[Mrs Gillan]

I am grateful for the intervention and am second to none in my admiration for the right hon. Gentleman, who has given far more to this matter over the years than I could ever hope to. His record speaks for itself.

The right hon. Gentleman is absolutely right. When I was preparing my Bill, I talked to an employer who employed high-functioning adults with autism and Asperger’s. I asked how he coped with having employees with Asperger’s, and he said he really liked it because he could be sure that they would do the same task and make the same check over and over again. Quality control was not needed at all because of the excellence of the work of those individuals. We need to recognise that people with autism can be a great benefit to a business or an industry and they are certainly not a liability or somebody who is just taken on to make up the numbers. The right hon. Gentleman’s intervention was very valuable and I wish that more employers would take on people who are on the spectrum.

Finally, parents and people involved in autism often refer to reaching the transition age as falling off a cliff. In my experience, it was less like the romantic idea of falling off a cliff and more like falling into a dark black hole. The Government must continue the work carried out by the previous Government and ensure that the Department of Health and others make sure that when young people with autism reach adulthood their needs are planned for and met by other services so that the black hole does not simply move to the age of 25, as many people fear it might.

We have come a long way in understanding autism, but we have a long way to go in understanding the spectrum and the challenges it presents to Governments and to individuals and their families. The case of Gary McKinnon brought autism back to the forefront of people’s minds and we must ensure that we do not forget the condition. It has been a Cinderella condition; this is the first debate on the subject in three years. We need to cast more light on it and to ensure that as a Government we gain lasting and positive change for people with autism so that they can achieve their full potential in our society. I very much look forward to hearing the Minister’s response.